A good Monday

Well Gracey finished her IV last week with no negative effects. There was one error encountered Friday afternoon. The last IV is Solumedrol in 100ml saline. Somehow the bag or tubing was punctured without anyone knowing. By the time it was caught the entire volume had leaked out. Since we had no backup to replace it with Gracey's IV's were over a little early. A phone call to the doctor (Scottish Rite) let us know that since she had had two previous Solumedrol IV's during the two preceeding days missing the third day was OK.

She had a great weekend. She ate and slept well . Very happy and full of energy. After this round of IV's (and this one included the IVIG) Gracey's rash has cleared somewhat. Mellowing out in color and intensity. Even her fingertips are better than ever.

Our only anomoly was this morning when she woke up. She had a small nose bleed which ended up covering part of her face and getting on her pillow and sheets. When she saw the blood it scared her but she calmed quickly. We think the dry night air is the cause and are considering a humidifier for her room. She's had a few small nose bleeds in the past 5 months producing similar volume. This one just stood out because it got all over the bed and Gracey.

Next Monday we're in for a checkup with the rheumatologists at Scottish Rite. This is the first since starting IVIG. We are hoping she will space Gracey's meds out further and so far Gracey has continued to progress.