It got icey here!

Brrrrrrr.... it's cold! Cold for Texas, that is. Over the past three days the temperature has dropped to just below freezing and stayed there the whole time. Some ice is on the ground and schools closed for a day but it is expected to pass by tomorrow. This picture was taken before the cold set in, of course. Gracey loves playing on the "Red Curly Slide"!

Well, Gracey has steadily improved since the last IV pulsing in late December. She had a definite flare-up with the facial rash (typical JDM pattern) but it is finally subsiding. Even though she never complains I can tell it bothers her to go to school with a red face. But, like I said, she doesn't complain and just smiles! Her muscle strength appeared (to me) to have went down very, very slightly about three weeks ago but I think now the strength has returned.

Gracey has been exceptionally happy the past two weeks. She wasn't unhappy before - but now she just seems to be unusually happy. She is definitely excited about her Make-A-Wish trip coming up next week and can't wait to meet Jennifer Love Hewitt. In fact, her favorite movie is now "The Audrey Hepburn Story" which she watches each night while laying in bed then falls asleep.
OK... Gracey wanted to write a message to Ms Hewitt just in case she reads this:

I've been looking forward to meeting you. I got my hair cut today for the trip and they gave me some hair gel so I won't get the frizzies because I might get the frizzies when I'm outside. I am excited to meet you and talk to you and ask you questions. My silly sisters will be there but we can ignore them if you want :) I want to meet you because you are a nice person and you are a very good actress. Love Gracey :)