Gracey's World: Gracey is doing great !!!

Gracey's World

On April 19, 2006 we learned our little Gracey developed a rare autoimmune disorder known as Juvenile Dermatomyositis (JDM) - she was 5 1/2 years old. At that time Gracey had become very weak and absolutely unable to get up from the floor. The diagnosis was the beginning of a long road to remission as there is no cure for JDM. This site is meant to track Gracey's progress as she works hard every day to conquer JDM. Thank you for your support and please check back often.

Friday, April 27, 2007

Gracey is doing great !!!

I am sorry it's been so long since I've updated. But... Gracey appears to be doing extremely well! We completed April's IV a week ago and she did great with it. Her rash continues to improve at a steady rate. Specifically she still exhibits some redness on her cheeks and just a little on her knuckles and finger joints. That rash tended to slightly flare up just before IV time. But we've noticed the last two rounds of IV's the rash has only flared slightly. We are hopeful she is slowly and surely making progress.