Gracey's World: Kindergarten Graduation Picture Day

Gracey's World

On April 19, 2006 we learned our little Gracey developed a rare autoimmune disorder known as Juvenile Dermatomyositis (JDM) - she was 5 1/2 years old. At that time Gracey had become very weak and absolutely unable to get up from the floor. The diagnosis was the beginning of a long road to remission as there is no cure for JDM. This site is meant to track Gracey's progress as she works hard every day to conquer JDM. Thank you for your support and please check back often.

Friday, May 18, 2007

Kindergarten Graduation Picture Day

Today is the last day of Gracey's May, 3-day IV pulsing. She is doing extremely well through this round. Her rash has remained very mild and almost non-existant. The worst part, as reported by Gracey, is getting the IV started and the long 8 hour days hooked to the IV pump. But today is her favorite. After the IV is over everything is removed and she's off to play for another month... maybe longer if the doctor spaces her meds. We'll keep you updated on that.

Today her kindergarten class is having their graduation pictures. So that we don't miss them I am getting Gracey ready to go up this morning. We'll pop in, get the picture made then head back to finish the IV. Her school is wonderful and works with is any way possible to accomodate our odd schedule.

Happy Graduation, Gracey!!!