Gracey's World: Doing Very Well

Gracey's World

On April 19, 2006 we learned our little Gracey developed a rare autoimmune disorder known as Juvenile Dermatomyositis (JDM) - she was 5 1/2 years old. At that time Gracey had become very weak and absolutely unable to get up from the floor. The diagnosis was the beginning of a long road to remission as there is no cure for JDM. This site is meant to track Gracey's progress as she works hard every day to conquer JDM. Thank you for your support and please check back often.

Wednesday, February 13, 2008

Doing Very Well

Tomorrow's Valentine's day and Gracey is really looking forward to it. She seems to be doing very well and had her first IVIG only pulsing on Feb. 2 & 3. This is a big deal because she's gotten regular IV doses of solumedrol (prednisone) for nearly two years! Her rash has not returned, no nail-fold capilaries viewable and muscle strength is excellent. Other than staying away from the sun she's scooting around like any other little girl.

Since coming off the solumedrol IV we've noticed pretty good growth. Since November 2007 she's grown almost a full inch. This is more than she grew during the previous year and a half. Teeth are falling out, too. Gracey loves it!!