Update - August 2008

I must apologize to all for not updating you more often. Although things have been very busy the last few months I should have provided a little information. Thank you for reading and I will work to post information more often.

Gracey is doing great! In fact she went for a checkup this past Wednesday. The doctor was very pleased and noted Gracey's improvement has remained on track for over a year now. She's maintained good muscle strength with no rash long enough the IVIG infusion was moved out to 8 weeks (from 6 weeks).

We were all excited to hear it. But what was even more exciting was to hear the doctor say that after the next two infusions if Gracey still remained this good she might try stopping the IV's all together! WOW!!! What started at 52 infusions per year has dwindled to 6 per year with an end finally in sight. Wow! Thank you Jesus!!!

More good news to report... Gracey is on her way this Sunday to a week long camp sponsered by Scottish Rite Hospital. The camp is for children with forms of arthritis and held yearly at Camp John Marc. Gracey's cabin has about 8 little girls, all the same age and all but one have never been to camp. There is even another little JDM girl. Gracey has been planning for the camp over the past few months and is so excited it's finally here. This past week was spent getting a new sleeping bag and other things needed for her trip. I worry that she will miss her daddy, though, and have offered to camp out at the entrance of the place... just to help her feel more comfortable. But she smiles and says it'll be OK :) ... don't worry daddy.