Happy, Happy Day!

On October 20, 2008 at a regular checkup with Gracey's rheumatologist it was decided and happily agreed that the time has come to stop all IV's. Gracey is officially off IV medicines!!! She danced in the exam room from the excitement.

Her body has done very well in maintaining itself as the meds were spaced. The IV she is getting off of is IVIG in which she got 40 grams over two days. Her skin is perfect - not even showing the redness we had gotten used to. Her nail bed capillaries are normal, the gotran's papules (sp?) have completely dissappeared, and her knees and elbows are normal color. No muscle weakness at all.

This is certainly a big deal and Gracey considers it a birthday present. Her birthday is the end of this month - she'll be 8. Three years ago to the day is when she came down with an upper respiratory infection which might have been the trigger to set her immune system off on this wild ride. Three years... wow. It goes by so fast. But I have to admit the last 3 years have seemed like 10 years.

Thank you all for your prayers and support. I ask that you keep Gracey in your prayers as the disease will always be there. But I know she will be fine and we will all work to keep her safe. And Jesus is always with her - no matter what.