Gracey's World: Rash changes

Gracey's World

On April 19, 2006 we learned our little Gracey developed a rare autoimmune disorder known as Juvenile Dermatomyositis (JDM) - she was 5 1/2 years old. At that time Gracey had become very weak and absolutely unable to get up from the floor. The diagnosis was the beginning of a long road to remission as there is no cure for JDM. This site is meant to track Gracey's progress as she works hard every day to conquer JDM. Thank you for your support and please check back often.

Monday, January 26, 2009

Rash changes

Gracey's rash has steadily declined from the deep red/purplish splotches to a smooth, reddish discoloration across her face. The intensity has dwindled so much most adults wouldn't even notice much unless they really looked. But... the rash is there. And it is following the pattern typical of JDM children known as the butterfly pattern. We are so happy the rash is diminishing, however we are being forced to accept that the bulk of this round of rashes was caused by JDM. We'll have a better idea of her status after this Wednesday's visit with the dermatologist.

I'm paying extra attention to her muscles and flexor areas for signs of JDM activity. None so far. Please say a prayer for Gracey. The Lord listens, and is already working to help us.